Truth as I see it

The other night I left my computer open to move up the chair to the desk and I accidentally hit some buttons and the next thing I know it’s saying that it’s ready for dictation and I didn’t even know that I had dictation on this computer. I just recently purchased this notebook that October of last year when the screen on my old notebook died. It would’ve been great to discover that when my arm was in a brace for six weeks but I’ll take it now because I’m having such severe shoulder pain I can’t type. I don’t even really know how to get there to give it a shot. Yesterday was a day from hell pain wise.   Seriously one of those days when you realize nothing is worth bearing this pain. I had three days of it this week. I guess it was a flare of the fibromyalgia which is disappointing because I blame my fibromyalgia on Colorado. This is the third time since we’ve lived here which isn’t bad I guess. In Colorado it would be three, four, sometimes five days a week. Betwe...

Lord it has been a rough week so much pain so much weakness hard to put my head in a good place. You have put great people in my life who are encouraging me including a friend who suggested I get a book on tape and it has arrived so I plan to start listening to it. Is called the Power of positive thinking by Dr. Norman Vincent Peale. I saw a movie made about him and it really spoke to my heart. It is mostly about you God and being sure of who you are. How to rid yourself of self-doubt and free yourself from worries stress and resentment which are all things I am obviously working on. I do believe that you love me and some day's, that's enough. If I don't write because of the pain and then I just have to realize that even writing just a little bit is better than not getting my thoughts down at all. Sometimes I have to change my idea what my blog has to include it doesn't have to be fluffy or nice or pretty it just needs to be real in this week this is all I have to off...

    I found this great list of Mothers day ideas and wanted to share it with you. Help the people in your life learn how to help you. This is from my friend Kim and her site is Grace is Sufficient 10 Great Mother’s Day Gifts for the Chronically Ill Woman E ach year my husband and kids ask what I would like for Mother’s Day. To be honest, they usually come up with the best gifts all on their own. Here are a few great things I’ve either received or would like. I bet you can relate! Here are 10 Great Mother’s Day Gifts for the Chronically Ill Woman A slow cooker with a few ready to go freezer meals for those day’s you’re not feeling well. Having a ready to go meal in the freezer that just needs dumped in a crock pot can truly help on those days when you’re not up to cooking. A pillow for the bathtub. Hot water therapy is recommended for a number of chronic illnesses and chronic pain conditions. Why not have a tub pillow to allow y...

I needed to read this today and it helped tremendously. Highly reccommend it. Serenity when ill and also this site rest ministries Be well!

  Lord on days like today with sharp pain in my body, I wonder where you are? Most people have one illness or injury to deal with and for me you keep allowing  more. Yesterday was a beautiful day spent with my husband and on the island. Everything seemed perfect, but by the end of the day the pain in my hip/back started. I should look at yesterday as a gift I suppose but my desire is for many more days like that - many. Help my attitude Lord change my heart. When I start to question why it gets me in trouble emotionally. My upbringing included the Catholic church which at that time, focused a lot on the sins and suffering from them. I only went to Catholic church until I was about 13 but some of those messages get ingrained in to your psyche so deep that I catch my self asking for your forgiveness Lord when I am in pain or having difficulty. The truth is I am already forgiven and the price for my sins is paid though the conversations of prayer with you are al...

I am happy to say I have started to use a cane and it has been quite useful! It helps my balance and my confidence - this is walking with out my AFO's like I like to do sometimes. This is part of the acceptance I have talked about.  I am really glad my physical therapist suggested it. I have also noticed when people see me with a cane they give me more room to walk through a crowded room, etc. I think it will let people know someone who has trouble walking is here and needs to find a chair like when we went to the movies this weekend.This is not a loss it is a gain and I am grateful to have it and have a little more freedom using it. Might sound strange to some. Never judge another until you have walked or in my case stumbled in their shoes. Lord I am so incredibly grateful for the physical therapist that you have brought in to my life here and how much knowledge she has about CMT . I love working with her she is a good listener and has deep compassion. She was the bright s...

One way to end CMT is for people that have it to refrain from having their own dna offspring. I was told in 1980 by a genetics counselor I had a 50/50 chance with each pregnancy to have a child with Charcot-Marie-Tooth. My first reaction at that young age was based on the 2 people that I knew who had it my father whose symptoms were so slight he did not know until I was diagnosed that he had it, and myself. I had corrective foot surgeries in 1977 and 1978 that changed my life - I thought forever! CMT wasn't so bad I thought and medical care just keeps getting better so I ignored the warnings including the concern for my physical ability to handle pregnancy and birth, I just did not equate the two with CMT and possible progression of my disease which did occur with each pregnancy. I rolled the dice so to speak because I wanted children so badly and it never occurred to me that if I did pass on CMT and that it could be worse or progress faster than mine had, I got lucky, 3 kids no C...