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Showing posts from June, 2020

Having words with God

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You alone can create such beauty! Why do you continue to be silent in answering my prayers for healing? I go in to have a mole checked on my back and the Doctor says,"it is fine but....." this one on your arm I can biopsy and burn. The pre-cancer on your face needs to be treated and I will biopsy the skin near your eyebrows". WHAT?????!!!!!! Wait, I came in about my back! If you have many health issues and deal with anxiety an unexpected issue can throw you in to a spin. I felt myself floating above my body as I was signing papers and being injected with lidocaine. The smell of burning flesh is nauseating. My mind is full speed with what ifing. Something is said about going to the ENT docs to have the removal of the spot in the center of my face, like a bullseye. I recall something called MOHS from when I had the Basal cell on my shoulder. I tell her I will get back to her and leave with a bandaid and wounded wings like when a bird trys to escape the cage.

Por fear what?

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Porphyria is a rare disease caused by a buildup of red blood cells and or porphyrins. All of this news because of blisters on my fingers and toes? It isn't possible is it that I could have another rare disease? Is it? Turns out I have Pseudo porphyria which is so much better than the actual disease. I am somewhat relieved. All I know is that the anti-inflammatory I depend on for pain control may be causing the blistering on my body. I have had to stop taking the medication. I now have severe joint pain. Fast forward 4 weeks I am referred to a Rheumatologist. A very nice Asian doctor with a thick accent. She examines me, looks at my x-rays and asks me a lot of questions. She told me if I didn't have CMT I would be in more pain! First time it has ever been an advantage. She also told me "you very strong lady. Why you no take pain medication?" I felt something in my head explode. 2 and a half years ago when I was in excruciating pain the doctors would only give me 1