Truth as I see it

Such an excellent post by my friend Kim at Grace is Sufficient Making decisions . I printed this nugget and will put it in my office to be a reminder. Yesterday was one of those valley days for me and if I had been pressed to make a decision it would not have been a good one. Sometimes we just need to ask for time and we need to pray. Prayer always helps to calm me and remind me I have a God that is greater than my pain and my bad day. He will work all things out for His glory! Kim is also doing a book club on "Choose Joy" written by Sarah Frankl - a christian woman with chronic illnes and Mary Carvers. I have never done a book club before but after reading her posts I am getting the book. Father you are amazing how you use others to give us your blessings. I want to lift Kim up to you today and ask to ease her burden and give her rest. She is such a precious friend to me and I appreciates that she uses some of her valuable time to reach out to others. Lord let this post t...

Feeling low energy but still so inspired by a book I have been reading, "Life Disrupted" by Laurie Edwards that I am going to quote her book here instead of writing a longer post myself. Most o f these thoughts are not new to us but it is somehow comforting and empowering to have them written down. Laurie's writing really speaks to chronic illness situations and solutions. I am so blessed to have found her book by way of her blog . It was one of those nights my fibromyalgia was in a frenzy and even though I was exhausted there was no sleep to be had and I googled chronic illness blogs hoping to find one and actually found a ton. When I read her words I was captured and instantly became a fan. Now that I have her first book I am reading it slowly to soak it in and hopefully cement in to my experience. It is my pleasure to share more of it here with you. "The line to adapting to physical problems and ignoring them is precariously thin.-  "In our sickest mom...

After several tests and doctor visits I have a few new diagnosis to add to my list- Arthritis in several joints and interstitial cystitis which explains why I feel like I have a UTI when I don't. Today I am feeling great and grateful to have a strong team of doctors caring for me. My elbow is healing faster than expected and I am grateful for that. I am a fiercely independent person combined with a progressive diseases - CMT and others it becomes a balancing act of resilience, strength, surrender and acceptance. I am not a negative person but I am finding the need to become more realistic. I hope and pray that my husband can stick with me through this as I fight every inch of the way. Sometimes we look at using aids such as walkers or chairs as losing the battle but if they are keeping us mobile and independent ya! I need to keep that kind of attitude as I continue on this journey. When I do get a scooter I will be happy. Maybe it's the season but I am feeling much m...

Your kidneys are failing???????????? I have had UTI‘s  aka urinary tract infections, since I was 7. I have been worked over by specialists, had 2 bladder surgeries, scoped twice, been asked the same mundane questions repeatedly, taken meds that as it turns out probably made my CMT worse and now my kidneys are failing? What did I do? How can this be happening? Ok you know what, I don’t even care anymore. Stop this ride I want to get off. I am not a martyr! I am so tired and can’t fight any more battles just to hold on to a life that is so incredibly difficult. Seriously maybe it’s time. Poof! Your gone, can’t take it back. Ah but I can. My God is amazing and he is full of compassion and mercy. He is big enough to hear my prayers, my complaints, my doubt, and love me anyway. I talk to God like I talk to most other people and he hears me. I asked him to heal me if he could make my life worth living – physically speaking. Lets re cap the last few months Respiratory i...