Truth as I see it

I sent this letter to 10 people in my life and one of them told me it inspired her to talk to her family about her pain. I am putting it on the blog hoping it may help someone in some way. Blessings This is an open letter to the people in my life that mean the most to me. I am sharing information with you so that our relationship can grow. I am going to be real and make myself vulnerable because our relationship is important to me. I have many ailments but the hardest thing I have to deal with is chronic pain. I want to explain to you for the sole purpose of understanding what I go through. Dealing with chronic pain is all about energy, the more pain I am in, the more energy my body sucks up to deal with it. Pain is like an energy vacuum. So when I am dealing with a lot of pain, I am left feeling as exhausted as if I ran a marathon that day, the day before and every day. When I am short or blunt with you it is because of this. I do not intend to sound callous or ...

                I sure would love to hear from some readers. Let me know how this post was received by you in the comments at the bottom. Thanks! September among other things, is Charcot Marie Tooth Awareness month . I have two tabs on the top of this page that can explain CMT and who discovered it. For this year I want to talk about what CMT is to me. CMT, I have had it all my life and yet it continues to present me with new challenges. I am 55 and I still try to ignore it and on a good day almost get away with it. When I over do it my joints ache and throb with pain. I have learned to adapt, evolved I suppose, in to a creature that is determined to be resilient. My arms are very weak now. I was trying to strengthen them but it only made things worse . My feet are turning in more and at night the pain from the calf muscles makes it hard to sleep. My body wants to curl in to a ball, it's tempt...

  Lord on days like today with sharp pain in my body, I wonder where you are? Most people have one illness or injury to deal with and for me you keep allowing  more. Yesterday was a beautiful day spent with my husband and on the island. Everything seemed perfect, but by the end of the day the pain in my hip/back started. I should look at yesterday as a gift I suppose but my desire is for many more days like that - many. Help my attitude Lord change my heart. When I start to question why it gets me in trouble emotionally. My upbringing included the Catholic church which at that time, focused a lot on the sins and suffering from them. I only went to Catholic church until I was about 13 but some of those messages get ingrained in to your psyche so deep that I catch my self asking for your forgiveness Lord when I am in pain or having difficulty. The truth is I am already forgiven and the price for my sins is paid though the conversations of prayer with you are al...

Jean-Martin Charcot Charcot's primary focus was neurology. He named and was the first to describe multiple sclerosis . [2] [11] Summarizing previous reports and adding his own clinical and pathological observations, Charcot called the disease sclerose en plaques . The three signs of Multiple sclerosis now known as Charcot's triad 1 are nystagmus , intention tremor , and telegraphic speech , though these are not unique to MS. Charcot also observed cognition changes, describing his patients as having a "marked enfeeblement of the memory" and "conceptions that formed slowly". He was also the first to describe a disorder known as Charcot joint or Charcot arthropathy, a degeneration of joint surfaces resulting from loss of proprioception . He researched the functions of different parts of the brain and the role of arteries in cerebral hemorrhage . [2] Charcot was among the first to describe Charcot-Marie-Tooth disease (CMT). The announcement was made s...

September is Charcot-Marie-Tooth awareness month and it has been a part of what prompted this blog. "Time to tell the world about CMT" from the movie Bernadette. A documentary has been made about a beautiful friend of mine Bernadette Scarduzio, it shows her life and her struggles with CMT- Charcot Marie Tooth the same disease that I have. Please view this link and feel free to pass it on. The movie is simply called Bernadette and can be found on Hulu or Amazon. https://www.youtube.com/watch?v=lUZC3cE7_CA The second clip talks about it being a family secret because for generations families have just tried to deal with CMT and not talk about it to each other.   https://www.youtube.com/watch?v=4-iQs7vBG_0 .  This happened in my family. My father did not know he had it until I was diagnosed because the range of symptoms can go from mild to severe at any given age. My father and I never talked about CMT. Up until 4 years ago I had not really talked to my kids about CM...