Posts

Showing posts with the label insomnia

One way to end Charcot Marie Tooth?

One way to end CMT is for people that have it to refrain from having their own dna offspring. I was told in 1980 by a genetics counselor I had a 50/50 chance with each pregnancy to have a child with Charcot-Marie-Tooth. My first reaction at that young age was based on the 2 people that I knew who had it my father whose symptoms were so slight he did not know until I was diagnosed that he had it, and myself. I had corrective foot surgeries in 1977 and 1978 that changed my life - I thought forever! CMT wasn't so bad I thought and medical care just keeps getting better so I ignored the warnings including the concern for my physical ability to handle pregnancy and birth, I just did not equate the two with CMT and possible progression of my disease which did occur with each pregnancy. I rolled the dice so to speak because I wanted children so badly and it never occurred to me that if I did pass on CMT and that it could be worse or progress faster than mine had, I got lucky, 3 kids no C...

Sleep

It's the nights that are hardest for me. My husband is asleep and I am chicken to go to the beach by myself and tv just makes matters worse. I just want to sleep. The CPAP machine seems to help when I can wear it -(trauma related Healing takes a lifetime ). Why can't I feel as tired at 9pm as I feel at 9am? My nerves are on fire and my muscles ache. I worry about what tomorrow will bring. Lord I know this is not the life you have for me and sometimes that makes it even more frustrating. I am tired of this battle. What must I do to be past it? Have mercy on my mind and remove this burden or at least give me rest. You are an all powerful God and my hope rests in your grace and goodness. Help me to trust you more Lord, in all things. To trust your timing, your reasons, and your promises. Please take this loneliness away that the enemy attempts to confuse me with. I am not alone as long as I am in your arms and blessed by your goodness. Lord help me to separate emotions and reality...