CMT Time to stop hiding it
September is Charcot-Marie-Tooth awareness month and it has been a part of what prompted this blog. "Time to tell the world about CMT" from the movie Bernadette. A documentary has been made about a beautiful friend of mine Bernadette Scarduzio, it shows her life and her struggles with CMT- Charcot Marie Tooth the same disease that I have. Please view this link and feel free to pass it on. The movie is simply called Bernadette and can be found on Hulu or Amazon. https://www.youtube.com/watch?v=lUZC3cE7_CA The second clip talks about it being a family secret because for generations families have just tried to deal with CMT and not talk about it to each other. https://www.youtube.com/watch?v=4-iQs7vBG_0 . This happened in my family. My father did not know he had it until I was diagnosed because the range of symptoms can go from mild to severe at any given age. My father and I never talked about CMT. Up until 4 years ago I had not really talked to my kids about CM...