Posts

Grace is Sufficient - Making Decisions

Such an excellent post by my friend Kim at Grace is Sufficient Making decisions . I printed this nugget and will put it in my office to be a reminder. Yesterday was one of those valley days for me and if I had been pressed to make a decision it would not have been a good one. Sometimes we just need to ask for time and we need to pray. Prayer always helps to calm me and remind me I have a God that is greater than my pain and my bad day. He will work all things out for His glory! Kim is also doing a book club on "Choose Joy" written by Sarah Frankl - a christian woman with chronic illnes and Mary Carvers. I have never done a book club before but after reading her posts I am getting the book. Father you are amazing how you use others to give us your blessings. I want to lift Kim up to you today and ask to ease her burden and give her rest. She is such a precious friend to me and I appreciates that she uses some of her valuable time to reach out to others. Lord let this post t...

2015 Inventory

Image
Can't believe it's time for double fives already! Starting a few white hairs coming though so no denying it. This last year has been another one full of change, acceptance and growth. Wouldn't want things to get boring! All in all it has been a year full of good memories and time well spent. I love Jesus even more than I ever have.  Michael and I are in a good place, a little bumped and bruised but happy and healing. My kids are living healthy happy lives with good people in them. I officially retired from nursing and am just grateful to have done it as long as I did. My favorite past time is coloring. I have been coloring to relax and bring calm in to my life for a long time.It is a positive memory from my childhood and comforts me. Now that adult coloring is popular I have more choices of what to color. I really like gel pens they make it easier on  my wrist. I pray for the person I am making the picture for while I am coloring, so it serves a greater purpose. ...

Cross + Posting

Shine On! Can I make a blog post centered around a sweet picture and quote? You betcha! I have had my experiences with spiritual warfare from horrendous times to small daily trip ups. The battle can seem unwinnable but the battle belongs to the Lord and keeping my faith focused on him keeps me strong and centered. I have certain prayers I use repeatedly and some scripture memorized which help. Mostly I just start talking to Him and laying my burdens down for Him to take care of, I also stay focused on knowing that I can get through anything the enemy throws at me when I am close to God. I know the end of the story and it is beautiful. see more Healing takes a lifetime Shine On!  

To keep or not to keep?

Had a very interesting experience last night. After seeing a podiatrist about my ankle we saw a man waiting for a cab with his foot wrapped and he looked discouraged. He asked us for a ride to the other medical facility 1/2 mile away, that seems so far when your unable to move yourself. It took us less than 5 minutes to take him. Turns out he was injured riding a motorcycle and it almost severed his foot. Here I am fighting for an amputation and he is fighting to save his foot. I know the issues don't line up but the thread of having a foot that doesn't work do.We both want to be pain free and as mobile as possible. I almost felt guilty for my perspective but reminded myself that he has not been dealing with this pain and foot issue for very long. Mine has been 25 years now. Not as bad as it currently is but repeated attempts to "fix" it have failed. I long for the day it is not attached to my body and other CMT'ers speak the same and are encouraging." It isn...
Image
repost from last year- Merry Christmas everyone!!!!!!!!!!! After several tests and doctor visits I have a few new diagnosis to add to my list- Arthritis in several joints and interstitial cystitis which explains why I feel like I have a UTI when I don't. Today I am feeling great and grateful to have a strong team of doctors caring for me. My elbow is healing faster than expected and I am grateful for that. I am a fiercely independent person combined with a progressive diseases - CMT and others it becomes a balancing act of resilience, strength, surrender and acceptance. I am not a negative person but I am finding the need to become more realistic. I hope and pray that my husband can stick with me through this as I fight every inch of the way. Sometimes we look at using aids such as walkers or chairs as losing the battle but if they are keeping us mobile and independent ya! I need to keep that kind of attitude as I continue on this journey. When I do get a...

Kindness and compassion

Image
Today was a genuinely rare showing of kindness and compassion from  my ortho doc here concerning my hip also my well being and quality of life. We talked for 15 mins and came up with a plan that gives me a sense of relief and tiny bit of hope. When a doctor can take just a few minutes with a person to brainstorm and answer questions it can take away so much anxiety, it has changed my whole outlook! I feel cared for, validated and important. I also felt heard which is so precious to me. This was a really great thing for me right now. Thank you Lord for giving me the ability to discuss my situation with my doctor and for keeping me unemotional so that I could speak clearly. Thank you for bringing this doctor in to my life. I pray for your continued guidance and provision for my needs. Amen

Where are you Lord?

I hesitate to share this kind of day because I know there are some struggling with even more than I am. It is truth though and that is what I committed to when I started this blog. Just hear God's voice and promises in your life and believe in Him no matter what. Where are you Lord? The road ahead is not clear and it seems uphill. I haven't the energy to travel it alone. I am not even sure I can make it with you carrying me.    Inner strength-blog  I am so exhausted and feel like I am inside a fish bowl watching life go on with out me. The doctors are overwhelmed by me how can I expect them not to be? My body is screaming from the inside. Yet if I were given a choice that I could be healed of pain or of exhaustion it would hands down be exhaustion. I can ignore the pain better if I am up and about or can I? I have persevered through all kinds of pain my whole life. Lord do I have to choose? Can it be both? I look to you- Whitney Houston I keep focusing on ...