Truth as I see it

Had a very interesting experience last night. After seeing a podiatrist about my ankle we saw a man waiting for a cab with his foot wrapped and he looked discouraged. He asked us for a ride to the other medical facility 1/2 mile away, that seems so far when your unable to move yourself. It took us less than 5 minutes to take him. Turns out he was injured riding a motorcycle and it almost severed his foot. Here I am fighting for an amputation and he is fighting to save his foot. I know the issues don't line up but the thread of having a foot that doesn't work do.We both want to be pain free and as mobile as possible. I almost felt guilty for my perspective but reminded myself that he has not been dealing with this pain and foot issue for very long. Mine has been 25 years now. Not as bad as it currently is but repeated attempts to "fix" it have failed. I long for the day it is not attached to my body and other CMT'ers speak the same and are encouraging." It isn...

repost from last year- Merry Christmas everyone!!!!!!!!!!! After several tests and doctor visits I have a few new diagnosis to add to my list- Arthritis in several joints and interstitial cystitis which explains why I feel like I have a UTI when I don't. Today I am feeling great and grateful to have a strong team of doctors caring for me. My elbow is healing faster than expected and I am grateful for that. I am a fiercely independent person combined with a progressive diseases - CMT and others it becomes a balancing act of resilience, strength, surrender and acceptance. I am not a negative person but I am finding the need to become more realistic. I hope and pray that my husband can stick with me through this as I fight every inch of the way. Sometimes we look at using aids such as walkers or chairs as losing the battle but if they are keeping us mobile and independent ya! I need to keep that kind of attitude as I continue on this journey. When I do get a...

Today was a genuinely rare showing of kindness and compassion from  my ortho doc here concerning my hip also my well being and quality of life. We talked for 15 mins and came up with a plan that gives me a sense of relief and tiny bit of hope. When a doctor can take just a few minutes with a person to brainstorm and answer questions it can take away so much anxiety, it has changed my whole outlook! I feel cared for, validated and important. I also felt heard which is so precious to me. This was a really great thing for me right now. Thank you Lord for giving me the ability to discuss my situation with my doctor and for keeping me unemotional so that I could speak clearly. Thank you for bringing this doctor in to my life. I pray for your continued guidance and provision for my needs. Amen