Monday, October 5, 2015

The up's and down's of thyroid

In July I was feeling tired probably from my trip to Colorado I told myself. Having CMT carries the danger of blaming any health related symptom on the CMT. Also because of CMT I have pushed myself hard my entire life. The kind of pushing a runner does to get through the marathon, beyond what your body tells you is  possible. This is not compatible with low thyroid however. So as we began the preparations to move I was pushing myself. I increasingly became more and more exhausted.  We were in the house just a few days and I had on of the worst UTI's I have ever had. The pain went away with medication but I was flat. All of the life sucked out of me. I returned to the doctor's office insisting that there was something else wrong with me. "are you depressed? It could be the fibromyalgia" were the comments I received from a doctor I had not ever seen before. Blood tests don't lie and are not usually subjective so I insisted on some.

There was something wrong- low thyroid! Even though I worked in health care hormone issues like thyroid are new to my base of knowledge but it made sense. So I started medication but actually got worse before I started feeling better. Cancer? Lupus? What was I dealing with? Well I still am not sure. My tests after 6 weeks of treatment have confused me. I can tell you I now know what it feels like to have some diseases that leave you so weak you can't muster up enough energy to get yourself a glass of water. I know my husband was scared. He actually started writing my eulogy, poor guy.

 I am once again calling upon God with a health issue. If I remember to keep him in charge the anxiety drifts and I can say "so what if it is Cancer or Lupus"?  I am feeling a little more like myself and well I am writing which I haven't been doing so that is a good sign.
I am confident He will oversee my every day.

Lord what a journey we have had together. I have never felt so close to death before. I have desired it at times due to pain- physical and emotional. Please forgive me for the doubt during those times. I have a renewed spirit and am full of things I want to do with my life. If it is your will I know that you will restore me to health enough to do the things that serve you. That is my strongest desire. Amen.

1/20/1016 Update- I am still confused on how the TSH and the T-3 and T-4 all work together but I am feeling better. The bad news is the weight gain is back and that is frustrating. I also continue to have some hot, cold and other symptoms. The more I read the more confusing ot becomes. I am seeing an endocrinologist now which gives me more confidence but it is a slow process. Praying for God's healing and guidance.


  1. I had an accident (vehicle whiplash) back in 1996 and went on to develop severe FM. During that time, OA came in full force. My primary, whom I fired, insisted my problems were all depression related. I developed a rash and went to a female dermatologist. She suspected that my symptoms that the primary would not test for a thyroid issue turned ou to be hypothyroidism. It's sad how long this went on before the testing came. She had it herself, so she knew. It's a God-send I met her. However, my body is no longer making any hormone and full Hashimoto's. Between the three major issues, it's hard to keep going. I try to pace with grace and do far better during the summer. I have S.A.D. and PTSD which are major in themselves. I know a better life on earth may never come. However, I (mostly until I falter @ times) retain hope through Him. I live in my spiritual side totally most of the time. Every other system fails me. Oppression and betrayal are difficult and feels like an assault on ourselves. In reality, our bodies and minds (fibro fog/thyroid issues) do betray us. We slowly or sometimes very quickly become people we no longer recognize. We try to maintain our new normals but at best, that can be an uphill battle if have sensitivities to everything and weather patterns are major demises. I won't lie. As we have transitioned into Fall, I have gone downhill a bit. Indian Summer is now here. So I'm a bit upbeat and a bit less painful. The exhaustion is real and comes from all of the above. Wow--triple threat. We are walking warriors. Oh, did I mention I am an incest survivor who repressed it until mid-life. Been working on that for 20 years. Came around the bend as best as I could be. Anyway, I want to encourage you and wow, life could be oodles worse than it is. God still uses suffering and we do grow through everything. He doesn't waste a tear. This is a taste of hell on earth. But we have promises of a pain-free life one day. Hang on for we are precious in His sight.

  2. Wow! Thanks for reading my page! I also have PTSD and would encourage you to check out my blog focused on trauma
    You mentioned a rash, did anyone check out your thyroid? Many of the symptoms are the same as fibro but there is medication to fix it.
    Always depend on Him He will meet your every need.
    God Bless


Please leave me any comments I appreciate you reading my page!