Yearly inventory

By the time I warm up to my birthday it's over .♡
I usually make an inventory list on my birthday of what I have learned or reaffirmed in the last year mostly because I want to be
the wise old woman everyone listens to. I can't believe it's been a year tomorrow that we have been here!

So here is my wisdom list - Things I have learned or affirmed
  • Having dreams come true is amazing but there is always a price to pay
  • Gecko tails come off if you grab them but they grow back
  • It does get a little chilly in Hawaii at night after you have been here awhile
  • Walking on a boat without my AFO's is no longer an option
  • Having my dog almost die really shook me up - never saw that coming
  • Investing in someone else's dream might be the defining moment in your relationship
  • Losing my vision was the scariest thing to happen this year
  • Telling people I would be happy to live in a studio apartment on Maui may not have been realistic but we are making it work
  • Writing about my trauma helps to take away it's power over my life
  • The threat of a hurricane is blown (ha) out of proportion
  • Being prepared for a hurricane makes me feel more secure
  • My husband is braver than I have ever know any man to be
  • My idea of a good movie is not Hollywood's that's for sure
  • Missing people is constant but if your the one that left you can't complain
  • Ambien is what was missing on my med list - Love that stuff!
  • People can block you on fb for no apparent reason
  • Whales are incredible mammals and I want to swim with one
  • I still hate centipedes!
  • Accepting my health makes me less angry and it's easier to be grateful for the health I do have
  • They make scooters that can go on the beach!
  • I love my little brother so so much and I am so proud of him!
  • Finding good doctors, ones that care and really listen is like gold
  • Taking Cipro 4-5 times a year the last 6 years has progressed my CMT
  • As much as I love my hubs I still want the bed to myself
  • It is not fair to have hair on my lip and pimples
  • When God wants your attention it is best to give it to him unconditionally
  • My husband will do anything I ask so it is important to keep what I ask of him respectful and honoring to our relationship
  • I am a survivor and an incredibly resilient lady who loves with a strong heart
  • Being less social makes me very unhappy
  • Watching Parenthood has made me a better person
  • Having more good days than bad is worth all of it
  • I have judged some people in my life to harshly and myself even worse and I want to be done with that
  • I love beef and I don't care if I am addicted to chocolate
  • Asking for something I need is so much better than being pissed off that someone didn't figure out I needed it
  • Some friends are forever friends and they love you unconditionally
  • Some friends are not
  • The harder it rains the bigger the waterfall
  • I think way too much about possible outcomes in other words I worry too much
  • "Church" is not really my thing Jesus and the word are
  • Living by the spoon theory really helps me and my hubs
  • In spite of mistakes I made I have 3 incredible children who humble me
  • Love is the greatest commandment, Hope gets you to the next day and faith carries you when you can't make it alone
  • When people love you and support your dream they buy tickets and open their home to you and they make an effort to stay connected and I feel loved
  • My new favorite flowers grow on lilikoi vines and for only a few days
  • Not being able to feed yourself or even cook really was frustrating
  • I want to live more in the present with intentionality purposefully because I think it will make my life more valuable to me
  • I need to love and intention in to my relationships constantly and show others how often they are thought of also prayed for
  • I need to trust God more and worry less
  • I need to take good care of myself and eat better and rest when I need to

Lord help me to stay focused on your plan for my life, keep my heart open and my attitude positive. I know that I know that I know you are God and no matter what comes my way I will feel your comfort and be in your arms forever. Let the next year be full of your blessings and may I have a heart of gratitude. While I am weaker and my disease has progressed I am resilient and I want to be used by you Lord I am willing. Lead me father I am yours. Amen

Also wanted to put a plug for one of my favorite blogs her list of goals is awesome.   A new kind of normal - check it out! 


Comments

  1. UnknownMarch 12, 2015 at 4:58 AM

    Awesome list...very humble and inspiring! I have fibromyalgia, chronic migraine and cervicogenic headache, a cervical fusion in c5-c7, arthritis and an autoimmune disease called Behcets disease. I try to remain positive, but it becomes difficult sometimes. I love your list and I need to try to remember these things!!

    ReplyDelete
  2. MauigirlMarch 14, 2015 at 12:39 AM

    Fibromyalgia is the pits! Mine is triggered by weather changes, barometric raising and lowering. I am so glad you read my page and left a comment. Check out Laurie Edwards books. They have helped me so much! Try to keep your sense of humor.
    God bless!

    ReplyDelete

Post a Comment

Please leave me any comments I appreciate you reading my page!

Popular posts from this blog

Chronic Illness and faith

The precise meaning of chronic is "persisting for a long time", and it is used chiefly of illnesses or other problems. If you are chronically ill chances are you are operating at max capacity every day. I know I am and have been for the last 26 years. I feel like the child’s game where you try to fill the bucket with out it spilling over and when it does the game is done. I feel like if I get one more thing medically to deal with – game over. Today I had to yell at a nurse over the phone, to get the help I needed. This should never happen! One of the reasons I went in to nursing was to make a difference, to actually care about and help people. Patch Adams one of my all time favorite movies touches on this and is an example of what I am talking about. When I worked at a hospital a patient with nausea and vomiting requested lime Jell-O and his nurse did not order it so I asked why and she said he would just vomit it back up. Since there was no medical reason he coul
Read more

Done being strong

I have had too much going on physically. I am overwhelmed and I have been trying to be strong not just for me but for everyone else. Today during a therapy session I touched back to my childhood and revealed where it all started------- In a hospital getting poked and prodded. Having my privacy invaded and ignored. It started when I was being told " be a big girl, don't cry, be strong". It was my mothers voice.  My experience started in 1964 and that seems like a million years ago if you look at today's medical environments. There were visiting hours and lots of rules. There were wards rather than rooms and a very cold sterile environment. Procedures were not explained to me I was told what to do but not what to expect. When I was eight I had both an upper and lower GI. The x-ray attendant was unkind and impatient which resulted in quite a mess. It just gets worse but now the picture is painted. I think we all look for something we have control over in experiences
Read more

Handicapped

Image
I am handicapped- there I said it! It is a reality I must come to terms with. I believe it will it make my life easier. I stopped hiding my CMT when I quit my last job and met Bernadette online and saw her videos. But not hiding it and identifying yourself as handicapped are two different things. I am scheduled for physical therapy next week and will get some advice of which device would help me to walk on sand and also identify me as handicapped. I am over fifty and it is much easier to address this issue now. I have lost most of my vanity and youthful exuberance and wearing AFO's for the last few years with shorts and skirts has also helped. The problem is with weak arms and injured right elbow and wrist I am not sure what suggestions they will have. I am open to whatever works at this point. Pick a new coping skill to work on! When you are chronically ill there are always obstacles to overcome and levels of physical challenges to deal with. For me the last several ye
Read more